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Sarcoma UK

Angela Barnes presents an appeal on behalf of Sarcoma UK, a rare cancer charity that provides support services for people, funds research for new treatments and gives critical help to anyone diagnosed with sarcoma and their families.

Release date:

9 minutes

On TV

Sunday 14:20

Sarcoma UK

Sarcoma is a rare cancer of the bone and soft tissue. Around 15 people are diagnosed every day in the UK, but awareness remains alarmingly low: three out of four people have never heard of it. This lack of knowledge means patients often face long delays before getting the right diagnosis and treatment. Sarcoma UK exists to change that.

We are the only cancer charity in the UK focusing solely on sarcoma. Our work spans three vital areas: providing direct support to everyone affected, funding pioneering research, and campaigning for faster, fairer treatment.

Our Support Line is staffed by expert advisors who understand this complex disease. For thousands of people each year, it is a lifeline at the hardest time of their lives. It offers clear information, practical advice and a listening ear when people feel most alone.

We fund millions of pounds of research projects, backing scientists and clinicians to find better treatments and improve early diagnosis. Sarcoma remains underfunded compared with other cancers, so our investment is crucial in pushing forward progress that would otherwise not happen.

We also campaign nationally to make sure that everyone has access to specialist sarcoma care. We know that when patients are referred quickly to the right teams, survival rates improve and quality of life is better.

By supporting Sarcoma UK, you are giving hope to people who often feel forgotten, and helping us drive change for a cancer that urgently needs more attention.

Maddie

Maddie was just 18 when she was diagnosed with alveolar soft part sarcoma, a very rare type of cancer. Her treatment delays meant the cancer spread, and she now lives with tumours in her lungs and bones. With no standard treatment available, Maddie has endured clinical trials and experimental drugs, often with severe side effects. Sarcoma UK funds vital research to change this picture, so that patients like Maddie have real options and better outcomes. Maddie has also become a powerful advocate, campaigning alongside the charity to raise awareness of the urgent need for more research.

Claire

Claire was diagnosed with myxoid liposarcoma in her thigh. She thanks Sarcoma UK’s “invaluable” Support Line team for spotting a mix-up with her treatment. She had been told by a healthcare professional that she would be given chemotherapy. She rang the Support Line and was told that chemotherapy is not usually the treatment for her subtype. They gave her the confidence to advocate for herself and get different treatment.

The Support Line team also advised Claire on how to manage this new treatment. “The Sarcoma UK specialists knew and understood what I was going through and offered practical support. They provided robust, accurate information, and they were also very caring.”

Dan

When his wife Lolly was diagnosed with parosteal osteosarcoma, Dan found himself in a world of medical terms and terrifying uncertainty. Sarcoma UK’s Support Line became a lifeline. The specialists helped them make sense of the jargon, guided them through treatment options and offered crucial emotional support. Even in the darkest days, Dan says the Support Line was there to steady them. Lolly sadly died in 2023, but she channelled her energy into raising awareness, appearing on national television to share her story. For Dan, the support they received was invaluable, and he wants others to have that same reassurance.

Credits

Role Contributor
Presenter Angela Barnes
Production Manager Katie O'Hanlon
Researcher Rebecca Gordon
Executive Producer Hardeep Giani
Director Arif Mahmood

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