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Available for over a year

My name is Louise. I’m a mum to Jacob, wife to Mark, and therapist and friend to many. I also live with a degenerative, muscle wasting disease - a type of Muscular Dystrophy. A few years ago, my hospital consultant asked a medical student to describe my condition. “Well,” he said, “she walks like a duck.” After a stunned pause, my husband and I howled with laughter. While I doubt the hapless student received the same reaction from the horrified neurologist, his clumsy response provided the perfect title for this documentary series. The premise is clear. I don’t see myself as a person with a disability, yet that’s what I am. I don’t spend much of my life thinking about disability, yet my mind is filled with it 24/7. I wouldn’t choose to listen to a programme about disability, yet that’s what I was desperate to make! It’s because living a life full of dependency and loss, my voice - and the voices of others like me - are so often silenced, so feared is the mirror of human weakness that others see reflected in our bodies. A year in the making, the audio recordings in this series skip from the micro - the exhaustion caused by picking up a box of dropped crackers (when my day’s energy must be meticulously budgeted) - to the macro, such as asking questions about our collective, fearful disregard towards the chronically ill. Amid all of this, are the real, raw and sometimes amusing sounds of my daily routine - I do live with an 8 year old, after all! - and some personal reflections on the acute emotional and physical pain caused by my diagnosis. I've tried to be absolutely honest in a way that has occasionally been exposing for me, to tell you what my life is like living with a disability. Epiosde 1: The Stairlift It’s all about the love-hate relationship I have with the most amazing piece of equipment which I spend seemingly endless minutes on. Its whirrs and beeps are a constant soundtrack to the day. Down for breakfast and up after the school run to work in my office, down for the Tesco delivery and up for a nap. If I fail to plan the day properly, I have to make extra trips – wasting precious energy and infuriating me with its interminable slow trundle. We wish we could jet propel the thing, but even as it is, I couldn’t live without it. Presented by Louise Halling, with thanks to her husband Mark and her son Jacob Produced by Catherine Carr and Jo Rowntree A Loftus Media production for ��ѿ��ý Radio 4 Photo © Muscular Dystrophy UK/Chris O’Donovan