ÃÛÑ¿´«Ã½

Available for over a year

Can you imagine what it would be like to have three kids who have suffered from the same rare disease, and then to be told that there is no cure for it either. That's what Nottingham mum Shakeela Ahmed has been going through. Her children were diagnosed with a terminal brain disorder called Lafora disease. Her eldest daughter Sonam died from the disease five years ago at only 17 years old. Her son Shamoan and daughter Amarah are on medication to control the condition but with no available cure, they could die before they reach adulthood. There is research being done into a cure, but it needs more funding. In this extract taken from ÃÛÑ¿´«Ã½ Radio Nottingham’s Dhamaka programme presenter Rupal Rajani speaks to Shakeela Ahmed…